The National Marrow Donor Program (NMDP)
has published the 2001-2002 Transplant Center Access Directorya free
resource for all patients who are undergoing a blood stem cell transplant and do
not have a matching donor in their family.
"Patients faced with the option of unrelated blood stem
cell transplantation are dealing with one of the most complex medical procedures
in modern medicine," said Pamela Weisdorf, director of the NMDP’s Office
of Patient Advocacy. "This directory contains the information patients and
their families need to choose an NMDP Transplant Center to receive their medical
The NMDP maintains a centrally organized computer registry of
more than 4 million volunteers who are willing to be stem cell donors for
patients unrelated to them.
To receive a transplant from an NMDP donor, patients must be
treated at one of the transplant centers in the NMDP Network. The Transplant
Center Access Directory contains useful information about every NMDP Transplant
Center, including contact information for the medical director, coordinator,
patient advocate, and financial worker; a list of the center’s attending
physicians; donor match criteria; type of facility (adult, pediatric, or both);
access criteria and how to arrange consultations; research interests; financial
criteria (deposits required) and whether assistance is provided; cost data for
services; transplant history (NMDP-facilitated and all other activity, ie,
autologous, related allogeneic, etc); center-specific survival (risk-adjusted
percentage); and raw survival data, categorized by age and disease.
The Transplant Center Access Directory also provides a list,
with phone number, of all NMDP International Transplant Centers, as well as
information on a variety of subjects related to transplants that may help
patients, family members, and medical professionals. These topics include steps
in choosing a transplant center and changing a transplant center, how to
understand individual transplant center information, how to understand survival
statistics, and how to find out about transplant insurance coverage.
To request a free copy of the Transplant Center Access
Directory, call the NMDP’s Office of Patient Advocacy toll free at
1-888-999-6743. The entire directory can also be found on-line at www.marrow.org.