About This Nursing Tool
Major deficiencies in the management of cancer-related pain are well documented and impact all dimensions of the patient's life, including physical, psychological, social, and spiritual well-being. These patient education materials on pain were created by researchers at City of Hope in Duarte, Calif, for a 5-year NCI-funded study (R01 115323), Reducing Barriers to Pain & Fatigue Management. The Principal Investigator for the project is Betty Ferrell, PhD, FAAN. Tami Borneman, RN, MSN, CNS, is the Project Coordinator and Senior Research Nurse Specialist, and Virginia Sun, RN, MSN, NP, is also a Senior Research Nurse Specialist involved in patient education. The study is conducted in collaboration with Medical Oncology and an Internal Advisory Board including disciplines of Chaplaincy, Nutrition, Medical Oncology, Patient Education, Psychology, Social Work, Rehab, and Patient Care Services.
This information is provided to all patients accrued to the study, in a notebook along with educational tip sheets on Energy Conservation and Exercise, Strategies to Help Promote Sleep/Wake Patterns, Nutrition to Manage Fatigue, Preventing and Managing Constipation, and, Coping With Emotional and Social Impact of Pain and Fatigue. The NCCN Patient Guidelines on pain and fatigue are provided as well.
The content of the patient education sessions is derived from the NCCN patient guidelines. The teaching materials are presented in a question and answer format for ease of reading and facilitation of discussion. Each session lasts between 30 and 40 minutes; however, the time may vary depending upon the complexity of the patient's pain or fatigue. The patients are then followed up with phone call reinforcement every 2 weeks, primarily to maintain the patient's interest and participation in the study and to decrease attrition.
Following are teaching points for the Patient Pain Assessment and Management sessions.
Session 1: Pain Assessment
1. Is there a benefit to having pain or suffering with pain?
Continuing to be in pain affects all aspects of your life (appetite, function, emotions, mood, sleep, and other areas).
It is best to stop pain before it becomes severe and harder to control.