For all the vast literature concerning survival after treatment for cancer, few articles provide long-term follow-up. At best, most provide 5-year survival statistics, the majority being actuarial, which means that many of the patients included do not even have 5-year follow-up. A few articles give 10-year data and call these long-term. But 5 or even 10 years is not a very long time for a child or young adult hoping for a normal life span, or for clinicians wishing to be able to predict a patient's prognosis after treatment.
This article reviews the barriers to adherence, including those unique to childhood cancer survivors, and the rationale for distribution of a survivorship care plan. We also discuss advantages and potential limitations of delivering survivorship care plans via web-based platforms, and describe the unique features of one of these platforms, Passport for Care.