Opinion|Videos|February 25, 2025

Closing Reflection: A Journey of Understanding and Resilience

Author(s)David Dingli, MD, PhD, Brandi Lewis

Panelists discuss how emerging treatments, digital health tools, and enhanced care coordination could streamline disease management and improve quality of life while identifying opportunities to strengthen provider communication and access to resources.

Episodes in this series

EP. 1 Recognizing PNH and Initial Challenges

EP. 1 Recognizing PNH and Initial Challenges

EP. 2 Empowering Patients in Treatment Planning

EP. 2 Empowering Patients in Treatment Planning

EP. 3 Navigating Treatment Options: Understanding Risks and Benefits

EP. 3 Navigating Treatment Options: Understanding Risks and Benefits

EP. 4 Decoding Symptoms: When Fatigue Speaks Volumes

EP. 4 Decoding Symptoms: When Fatigue Speaks Volumes

EP. 5 Starting Treatment: Insights and Initial Experiences

EP. 5 Starting Treatment: Insights and Initial Experiences

EP. 6 Living With PNH: Long-Term Management and Caregiver Support

EP. 6 Living With PNH: Long-Term Management and Caregiver Support

EP. 7 Patient Voices: Shaping the Future of PNH Care

EP. 7 Patient Voices: Shaping the Future of PNH Care

EP. 8 Closing Reflection: A Journey of Understanding and Resilience

EP. 8 Closing Reflection: A Journey of Understanding and Resilience

Video content above is prompted by the following:

How do you think advancements in paroxysmal nocturnal hemoglobinuria care will impact the patient and caregiver experience in the future?
Are there any aspects of your care or communication with your health care team that you feel could be improved?

This program was made possible with support from Novartis Pharmaceuticals.

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