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Opinion|Videos|February 25, 2025

Starting Treatment: Insights and Initial Experiences

Author(s)David Dingli, MD, PhD, Brandi Lewis

Panelists discuss how they navigated initial treatment confusion by seeking clarification from healthcare providers, consulting patient resources, and connecting with support groups to better understand their care journey.

Episodes in this series

EP. 1 Recognizing PNH and Initial Challenges

EP. 1 Recognizing PNH and Initial Challenges

EP. 2 Empowering Patients in Treatment Planning

EP. 2 Empowering Patients in Treatment Planning

EP. 3 Navigating Treatment Options: Understanding Risks and Benefits

EP. 3 Navigating Treatment Options: Understanding Risks and Benefits

EP. 4 Decoding Symptoms: When Fatigue Speaks Volumes

EP. 4 Decoding Symptoms: When Fatigue Speaks Volumes

EP. 5 Starting Treatment: Insights and Initial Experiences

EP. 5 Starting Treatment: Insights and Initial Experiences

EP. 6 Living With PNH: Long-Term Management and Caregiver Support

EP. 6 Living With PNH: Long-Term Management and Caregiver Support

EP. 7 Patient Voices: Shaping the Future of PNH Care

EP. 7 Patient Voices: Shaping the Future of PNH Care

EP. 8 Closing Reflection: A Journey of Understanding and Resilience

EP. 8 Closing Reflection: A Journey of Understanding and Resilience

Video content above is prompted by the following:

When you started treatment, were there any aspects you found confusing or unexplained, and how did you address them?

This program was made possible with support from Novartis Pharmaceuticals.

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