Living With PNH: Long-Term Management and Caregiver Support

Video content above is prompted by the following:

• How do you stay organized with your treatments, appointments, and symptom tracking?
• Have there been times when you felt uncertain about your care plan, and how did your team address that?
• How do you help patients adjust to the idea of paroxysmal nocturnal hemoglobinuria (PNH) as a chronic condition requiring lifelong management?
• What signs indicate that a therapy change may be needed, and how do you guide patients through that transition?
• What role do caregivers play in the patient’s care journey, and what advice would you give to other patients about involving loved ones in their care?
• How do you help patients stay hopeful when treatment adjustments are necessary or when challenges arise?

This program was made possible with support from Novartis Pharmaceuticals.