Patient and Provider Perspectives on the Relapsed/Refractory Multiple Myeloma Journey

In this opening segment, Samantha Shenoy, NP, introduces the From All Angles discussion and is joined by Elizabeth Bohannon, who shares her experience living with multiple myeloma, and Isabel Curtin, LCSW, who provides a psychosocial and supportive care perspective.

In this segment, Isabel Curtin, LCSW, discusses the emotional and practical challenges that patients and families may face while navigating relapsed/refractory multiple myeloma and multiple lines of therapy.

A nurse practitioner, clinical social worker, and patient discuss navigating treatment-related concerns and psychosocial considerations in multiple myeloma.

In this segment, Elizabeth Bohannon reflects on how her treatment goals and outlook evolved as she progressed through different stages of relapsed/refractory multiple myeloma.

In this segment, Elizabeth reflects on the period following her stem cell transplant, when she was able to maintain an active lifestyle for a time before her disease progressed again.

In this segment, Isabel Curtin, LCSW, discusses how social workers and the broader multidisciplinary care team can help patients and families navigate uncertainty and complex treatment decisions in relapsed/refractory multiple myeloma.

In this segment, Elizabeth Bohannon reflects on the challenges of living with relapsed/refractory multiple myeloma over the long term and emphasizes the importance of finding a supportive community.

In this segment, Elizabeth Bohannon discusses the treatment-related adverse effects that had the greatest impact on her daily life throughout her relapsed/refractory multiple myeloma journey.

In this segment, Elizabeth Bohannon shares practical strategies she used to manage treatment-related toxicities during her relapsed/refractory multiple myeloma journey, particularly dry mouth, oral health changes, nail changes, and skin toxicity associated with talquetamab.

In this segment, Isabel Curtin, LCSW, discusses how psychosocial support can help patients cope with treatment-related adverse effects that may not be visible to others but can still significantly affect emotional well-being, relationships, and daily life.

In this segment, Elizabeth Bohannon discusses practical strategies that helped her manage treatment-related challenges and maintain quality of life during her relapsed/refractory multiple myeloma journey.

In this segment, Isabel Curtin, LCSW, discusses how healthcare teams can reduce stigma and create a supportive environment where patients feel comfortable discussing sensitive concerns such as fatigue, bowel changes, body image, and emotional distress.

In this segment, Isabel Curtin, LCSW, emphasizes the importance of open communication between patients, families, and healthcare teams throughout the relapsed/refractory multiple myeloma journey.

In this segment, Isabel Curtin, LCSW, discusses the psychosocial, financial, and practical challenges that can accompany living with relapsed/refractory multiple myeloma, including repeatedly updating family and friends about treatment, managing work and financial responsibilities, and accessing community resources and support groups.

In this segment, Isabel Curtin, LCSW, discusses how patient communities and support organizations can complement clinical care by providing education, connecting patients and caregivers with others who have similar experiences, and helping normalize the challenges of living with relapsed/refractory multiple myeloma.

In this closing segment, Elizabeth Bohannon reflects on what continues to give her hope while living with relapsed/refractory multiple myeloma.