Self-Advocacy and Treatment Decisions in Relapsed/Refractory Multiple Myeloma

In this segment, Isabel Curtin, LCSW, discusses the psychosocial, financial, and practical challenges that can accompany living with relapsed/refractory multiple myeloma, including repeatedly updating family and friends about treatment, managing work and financial responsibilities, and accessing community resources and support groups. Elizabeth Bohannon then reflects on the importance of self-advocacy and having loved ones who can advocate alongside her throughout treatment. She describes how her perspective on multiple myeloma as a chronic disease has helped her navigate relapse and treatment changes, while emphasizing the need to continually balance treatment goals with potential adverse effects and their impact on quality of life. Elizabeth also discusses how language and perceptions surrounding cancer can affect the patient experience, noting that framing the disease as an ongoing part of life rather than a battle can be meaningful for some patients. She highlights the role of social workers, nurse practitioners, and therapists in helping patients develop supportive ways to understand and communicate about their experience.