Shared Decision-Making in Relapsed/Refractory Multiple Myeloma

In this segment, Isabel Curtin, LCSW, discusses how patient communities and support organizations can complement clinical care by providing education, connecting patients and caregivers with others who have similar experiences, and helping normalize the challenges of living with relapsed/refractory multiple myeloma. The discussion then turns to staying informed and participating in shared decision-making as treatment options continue to evolve. Elizabeth Bohannon emphasizes the importance of helping the healthcare team understand who the patient is beyond the diagnosis, including personal priorities, lifestyle, interests, and the activities that contribute to quality of life. She explains that communicating these priorities can help ensure that treatment discussions also consider how adverse effects may affect the patient's daily life. Isabel reinforces the importance of building strong relationships with the healthcare team and staying informed through reliable myeloma resources. Elizabeth also describes how participating in fundraising and community activities connected her with other patients, caregivers, and healthcare professionals, providing meaningful social support throughout her relapsed/refractory multiple myeloma journey.